Date and Location
Saturday December 4, 2021

Calling all social workers, neuropsychologists, psychiatrists, and anyone who provides psychosocial management for individuals affected by Duchenne muscular dystrophy: The Neuromuscular Disease Network for Canada (NMD4C), in partnership with Jesse’s Journey and Muscular Dystrophy Canada (MDC) have developed a three-part CPD-accredited Defeat Duchenne Canadian Conference. We have brought together subject matter experts from pediatric and adult care for a comprehensive overview of the Canadian adaptation to the international DMD care considerations published in 2018. Registration for is now open for Session 3, the final session of the conference.


If you are new to this conference: register here (, you will receive an email confirmation with a link to sign up for Whova to access the session.


When: December 4th, 2021 from 11 am to 2 pm ET

Day 2: December 4th

  • 11-12:30 pm ET – Duchenne in the Brain with our keynote speakers Professor Francesco Muntoni, GOSH London, UK and Dr. Veronica Hinton, Queen’s College, New York, USA, moderated by Dr. Kathy Selby, BC Children’s, Vancouver
  • 12:30 – 2 pm ET – Psychosocial Management with Dr. Jean Mah, Alberta Children’s Hospital, Dr. Stephanie Plamondon, Alberta Health Services

Learning Objectives:

  • Learn about the current landscape of Duchenne standards of care in psychosocial management across Canada
  • Understand lived experience of psychosocial management from people with Duchenne and their families
  • Participate in insightful discussion to identify and provide recommendation on how to address current gaps in Duchenne standards of care in psychosocial management

Should you have any questions or difficulties, please contact Kate Miller, Coordinator of Administration and Donor Relations at Jesse's Journey: kate.miller@jessesjourney